Annual blood work that all Celiacs should have

At today’s potluck meeting, chapter Vice President Jennie Johnson shared her notes from the CCA National Conference that she attended in June.  Among the interesting items she shared were the annual follow-up tests that all Celiacs should ask for from their doctors.

By popular demand, here is an excerpt of her conference notes from that presentation.  Note, if you are a member of the Kelowna Chapter, you would have received her full 7 pages of conference notes in your email on July 1st.


dr-rashid

Dr. Mohsin Rashid

Notes on Dr. Mohsin Rashid’s presentation – CCA National Conference 2013
Dr. Roshid is Member of the CCA Professional Advisory Board and Pediatric Gastroenterologist in Halifax 

Good follow-up is important for both children and adults with good evidence that follow-up improves adherence to the gluten-free diet.

After diagnosis of Celiac disease patients should:

  • At 2 months: see a physician (family doctor or gastroenterologist) and dietitian
  • At 6 months: repeat celiac serology (see note below)
  • At 12 months: have a complete physical, TTG blood test, and ideally a biopsy (not in children)
  • Annually: celiac serology and thyroid test

Celiac Serology includes:

  • TTG
  • Iron
  • Folate
  • Thyroid
  • Liver Enzymes
  • Calcium
  • Phosphate
  • Vitamin D

The follow up should focus on:

  • nutritional deficiencies
  • adherence to diet
  • monitor for complications

Even with strict adherence to a gluten-free diet, there is still an increased risk of other auto-immune problems.  Celiac patients with two abnormal genes (for celiac disease) have a greater risk of complications than those with one abnormal gene.

In general:

  • Consult with a skilled dietitian
  • Educate yourself
  • Follow a lifelong adherence to a gluten-free diet
  • Identify nutritional deficiencies to avoid anemia and osteoporosis 
  • Advocacy  (support the CCA and your local chapter)
  • Monitor for complications
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3 thoughts on “Annual blood work that all Celiacs should have

  1. Pingback: What the heck is going on with my body? | Dharma Goddess: The Journey to Me

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