At today’s potluck meeting, chapter Vice President Jennie Johnson shared her notes from the CCA National Conference that she attended in June. Among the interesting items she shared were the annual follow-up tests that all Celiacs should ask for from their doctors.
By popular demand, here is an excerpt of her conference notes from that presentation. Note, if you are a member of the Kelowna Chapter, you would have received her full 7 pages of conference notes in your email on July 1st.
Notes on Dr. Mohsin Rashid’s presentation – CCA National Conference 2013
Dr. Roshid is Member of the CCA Professional Advisory Board and Pediatric Gastroenterologist in Halifax
Good follow-up is important for both children and adults with good evidence that follow-up improves adherence to the gluten-free diet.
After diagnosis of Celiac disease patients should:
- At 2 months: see a physician (family doctor or gastroenterologist) and dietitian
- At 6 months: repeat celiac serology (see note below)
- At 12 months: have a complete physical, TTG blood test, and ideally a biopsy (not in children)
- Annually: celiac serology and thyroid test
Celiac Serology includes:
- Liver Enzymes
- Vitamin D
The follow up should focus on:
- nutritional deficiencies
- adherence to diet
- monitor for complications
Even with strict adherence to a gluten-free diet, there is still an increased risk of other auto-immune problems. Celiac patients with two abnormal genes (for celiac disease) have a greater risk of complications than those with one abnormal gene.
- Consult with a skilled dietitian
- Educate yourself
- Follow a lifelong adherence to a gluten-free diet
- Identify nutritional deficiencies to avoid anemia and osteoporosis
- Advocacy (support the CCA and your local chapter)
- Monitor for complications